Research Projects

ESR1 (University of Huddersfield, UK)

Older intersex people.

This project looked at the issues faced by older (50+) intersex people by exploring their lived experiences and life histories.
In taking a pan-European approach, the project has enabled identification of the specific concerns of this highly invisible group.

PI: Professor Surya Monro

OII Europe Steering Board Meeting Brussels 2018 © OII Europe

ESR2 (University of Huddersfield, UK)

Equality, diversity and intersex policy making – A comparison of the Republic of Ireland and England.

This project was designed to generate knowledge about social policy making in the area of intersex, specifically policy making in the areas of equality and diversity, using the Republic of Ireland and England as case studies. It addresses the large deficit in social policy analysis about intersex, from a cross-sectoral position.

PI: Professor Surya Monro

ESR3 (Université libre de Bruxelles, Belgium)

Unpacking the conditions of emergence of intersex activism in Europe.

This project focused on gaining knowledge about the historical development of intersex activism across Europe, including the geo-political conditions for its emergence (or lack of emergence) and processes of activist identity construction and alliance-building.

PI: Dr David Paternotte

Ray Newman. Dani Coyle. Valentinio Vecchietti. Ki Griffin.

ESR4 (Dublin City University, Ireland)

Framing legislative and policy reform to improve the lived experience of intersex in Ireland and Malta.

This project aimed to generate an understanding of whether and how Irish and Maltese law guarantee exercise of human rights of intersex people. It has identified gaps and posited suggestions for how law could be reformed to ensure the rights of intersex people are realised in their day-to-day lives.

PI: Dr Tanya Ní Mhuirthile

ESR5 (Dublin City University, Ireland)

The inculcation of awareness of intersex in education in Ireland and Sweden.

This project sought to generate understanding of intersex in Irish and Swedish education, focusing on the knowledge and perceptions of policy makers and implementers concerning intersex issues in Government Departments of Education in both jurisdictions. It has also uncovered experiences of people living with I/VSC and their parents.

PI: Dr Tanya Ní Mhuirthile

Ray Newman

ESR6 (University of Zurich)

Impact of parental psychosocial indicators on decision-making and outcome regarding intersex in Europe.

This project explored the psychosocial aspects of families with an intersex child and sought to develop knowledge on the influence of psychosocial factors on familial choice-making on medical interventions and support programmes for families.

PI: Dr Jürg Streuli

 ESR7 (University of Zurich)

Role, dissemination and impact of clinical ethics in multidisciplinary teams on intersex in Europe.

This project looked at the role of ethics in decision making about intersex medical interventions across medics and healthcare professionals with different areas of expertise. It addressed the gap in knowledge about ethics and intersex care, exploring the ethical problems faced by multi-disciplinary teams.

PI: Dr Jürg Streuli

Izzy MacCallum

ESR8 (Universitat Autònoma de Barcelona)

Intersex subjectivities and the lived experiences of intersex people.

This project analysed cultural and medical portrayals of intersex people, to understand the identity construction of intersex people, including their lived experiences, agentic processes, experiences of service provision, and coping strategies. It explored the personal processes of families, advocates, artists, cultural actors, practitioners, and policy makers involved with intersex issues.

PIs: Dr Joan Pujol and Dr Lucas Platero

ESR9 (Escuela Andaluza de Salud Pública / Andalusian School of Public Health)

Research ethics in intersex studies – Exploring ethical principles for a human rights-based research practice.

This project aimed to identify human rights violations in research related to intersex issues and to develop principles for a human rights-based research practice in intersex studies.

PI: Dr Amets Suess Schwend –

Image provided by Hiker Chiu, OII Asia
4th International Intersex Forum. ©Ins A Kromminga.

ESR10 (Escuela Andaluza de Salud Pública / Andalusian School of Public Health)

The right to bodily integrity, autonomy and self-determination -Demands and strategies of international and regional intersex activist networks and human rights bodies.

This project explored the demands and strategies of international and European intersex activist networks and organizations, as well as the experiences and needs of intersex activists. It created knowledge on human rights frameworks and recent developments in the legal and health care context and developed recommendations for policy makers and health professionals to protect the human rights of intersex people.

PI: Dr Amets Suess Schwend –