Abstracts, publications in peer reviewed journals and other outcomes produced by the INIA consortium are provided here below.

Peer reviewed publications

Martin Gramc, Surya Monro, John Stephenson, Jürg Streuli
Psychosocial Support for Parents, Infants, Children, and Adolescents with Variations of Sex Characteristics: Results from a Pan-European Survey
Behavioral Sciences
Published 17 September 2024

https://doi.org/10.3390/bs14090832

https://zenodo.org/records/13790050

Yessica Mestre-Martínez

“These Researchers Think They Come From Heaven with Analytical Superpowers When They Don’t”: A Qualitative Analysis of Research Experiences in Intersex-Related Studies
Social Sciences. 2024;13(8);421
Published 12 August 2024

https://doi.org/10.3390/socsci13080421

https://zenodo.org/records/13379238

Martin Gramc
Approaches in care for people with variations of sex characteristics—focus groups in the European context on the strengths and challenges of multidisciplinary teams
Sexual Medicine, Volume 12, Issue 4, August 2024, qfae046
Published 13 August 2024

https://doi.org/10.1093/sexmed/qfae046

https://zenodo.org/records/13341236

Lucas Platero and Svet Sol
Analysing intersex rights narratives in Spain
Sexualities
Published June 13, 2024

https://doi.org/10.1177/13634607241259537

https://zenodo.org/records/11636844

Martin Gramc
Challenges in Transition of Care for People with Variations in Sex Characteristics in the European Context
MDPI – Healthcare
Published 30/01/24
https://doi.org/10.3390/healthcare12030354

https://zenodo.org/records/11260279

Aegerter, A., Larrieu, G. & Raz, M.
Visibiliser les i sans (en faire une) exception.
Santé Publique 2022, 34, 103-108 (available online 15 June 2023)
https://doi.org/10.3917/spub.hs2.0103

https://zenodo.org/record/8064672

Aegerter, A.
Enjeux et controverses quant à la participation d’activistes intersexes au Consensus de Chicago (2005).
Santé Publique 2022, 34, 59-67 (available online 15 June 2023)
https://doi.org/10.3917/spub.hs2.0059

https://zenodo.org/record/8064628

Surya Monro, Sean Saifa Wall, Kate Wood
Intersex equality, diversity and inclusion and social policy: Silences, absences, and erasures in Ireland and the UK
Critical Social Policy (22 May 2023)
https://doi.org/10.1177/02610183231175055

https://zenodo.org/record/7973591

Dani Crocetti, Adeline Berry, Surya Monro
Navigating the complexities of adult healthcare for individuals with variations of sex characteristics: from paediatric emergencies to a sense of abandonment
Culture, Health and Sexuality (18 May 2023)
https://doi.org/10.1080/13691058.2023.2208194

https://zenodo.org/record/7956354

Ernesto Zelayandia
The Growing Visibility of Intersex Demands at the United Nations: A Review of the Treaty Bodies’ Concluding Observations
Social Sciences, Soc. Sci. 2023, 12(2), 73; (30 January 2023)
https://doi.org/10.3390/socsci12020073

https://zenodo.org/record/7584951

Adeline Berry
Ageing in obscurity: a critical literature review regarding older intersex people
Sexual and Reproductive Health Matters (11 November 2022)
https://doi.org/10.1080/26410397.2022.2136027

https://zenodo.org/record/7317892

Yessica Mestre
The Human Rights Situation of Intersex People: An Analysis of Europe and Latin America
Social Sciences 2022, 11(7), 317  20 July 2022)
https://doi.org/10.3390/socsci11070317

https://zenodo.org/record/6913673

Monro, S., Suess Schwend, A., Aegerter, A Keating, A., Mestre, Y., Gramc, M. (2021).
Introducing intersex wellbeing and rights and the INIA programme
European Journal of Public Health,
Volume 31, Issue Supplement_3, ckab164.165,
https://doi.org/10.1093/eurpub/ckab164.165

https://zenodo.org/record/5873398

Ebook

The INIA ebook is a compilation of the narratives of the lived experience of intersex participants. It can be downloaded here.

Working paper

A working paper by Ernesto Zelayandía-González titled “INTERSEX MOVEMENTS AS EMBODIED HEALTH MOVEMENTS: RETHINKING A THEORETICAL PERSPECTIVE” is available here.

Briefs

INIA Consortium
Ebrief: Indicative policy recommendations concerning people with intersex variations of sex characteristics in the European Union
Link to document

eBrief for educators: It is time to act: Making your school inclusive for students with intersex variations
Link to the document in English

Link to the document in Spanish

Link to the document in French

Link to the document in German

eBrief for Healthcare providers: Healthcare provision for people with intersex variations of sex characteristics 
Link to the document in English

Link to the document in Spanish

Link to the document in French

Link to the document in German

eBrief for families: Has your child been diagnosed with a variation of sex characteristic?
Link to the document in English

Link to the document in Spanish

Link to the document in French

Link to the document in German

Adeline Berry:
Ebrief – Older Intersex People
Link to document

Yessica Mestre Martínez
Ebrief – Intersex studies: A set of principles for ethical and human rights-based research practices
Link to document

Link to document in Spanish

Link to document in French

Link to document in German

Ernesto Zelayandía González
E-Brief – Recommendations on human rights of intersex people for law and policymakers
Link to document

Link to document in Spanish

Link to document in French

Link to document in German

Ernesto Zelayandía González

E-Brief – Recommendations on human rights of intersex people for health professionals
Link to document

Link to document in Spanish

Link to document in French

Link to document in German

Tanya Ní Mhuirthile, Somya Dixit, Ernesto Zelayandía González, Steph Lum, Yessica Maria Mestre Martinez, Audrey Aegerter and Amets Suess Schwend
Human Rights eBrief
https://doras.dcu.ie/27292/1/INIA%20Human%20Rights%20eBrief%2C%20final%2022.05.26%20ML.pdf

ESR5 Axel Keating (DCU) and Jukka Lehtonen (University of Helsinki)
“Intersex Traits and Variations of Sex Characteristics in Education: A Finnish Context”
https://doras.dcu.ie/26683/

Project reports

Report on intersex representations: From Erasure to Agency

Svet Sol, Marisela Montenegro, Joan Pujol & Lucas Platero

Full report here

eReport on Intersex issues and policymaking in the EU

Audrey Aegerter, Adeline Berry, Surya Monro, David Paternotte

The ebook can be downloaded here.

eReport on Law, Ethics and Human Rights

The full report can be accessed here: https://doras.dcu.ie/28680/

and individual sections of the report are provided here below.

Section 1: Intersex Framings within Human Rights Law, Stephanie Lum

Section 2: Review of methodological and ethical frameworks, Yessica Mestre Martinez

Section 3: Report providing results of the review of existing ethical principles in intersex studies and related fields, Yessica Mestre Martinez

Section 4: Report on systematic explorative review I, Ernesto Zelayandía González

Section 5: Report on systematic explorative review II, Ernesto Zelayandía González

Books and book chapters

Surya Monro, Adeline Berry, Morgan Carpenter, Dani Crocetti, Sean Saifa Wall

Book title: Intersex, Variations of Sex Characteristics, DSD, Critical Approaches

Routledge, 2024

https://www.routledge.com/Intersex-Variations-of-Sex-Characteristics-DSD-Critical-approaches/Monro-Berry-Carpenter-Crocetti-Wall/p/book/9781032113791

Martin Gramc
Chapter title: Tortuous Paths Towards Trans Futures: Trans movement in Slovenia

Book title: Transgender in the post-Yugoslav space: Lives, Activisms, Culture

Edited by Bojan Bilić, Iwo Nord and Aleksa Milanović
ISBN: 978-1447367611
September 21, 2022

Abstracts

KSA Conference 2022
Adeline Berry
Older Intersex People: A Pan-European Intersectional Approach

PGR Conference 2022, University of Huddersfield
Adeline Berry
Older Intersex People, Invisibility and Resilience